Cancer is the number one cause of disease-related death in children 1-14 years of age in Australia. Cancer Council Queensland is working every day to improve outcomes for children with cancer.
The Australian Childhood Cancer Registry is one of only a few national registries of childhood cancer in the world and the only Australian population-based registry specifically for childhood cancer. Information is collected with the support and assistance of all State and Territory Cancer Registries and all treating paediatric oncology hospitals throughout Australia. Funded and managed by CCQ, and with appropriate ethical and legislative approvals, the Registry records clinical and treatment information on each of the 750 to 800 children a year diagnosed with cancer in Australia.
The Australian Childhood Cancer Registry is therefore a rich source of information on childhood cancer, containing a complete register of more than 20,000 cases of childhood cancer diagnosed in Australia since 1983.
Helping patients and families
Collection of a population-based, nationally consistent childhood cancer clinical data set is essential for national reporting, international benchmarking and clinical epidemiologic research. The Australian Childhood Cancer Registry provides current, accurate and accessible information about incidence, mortality and survival – information that is vital for addressing the future needs of children with cancer.
Most importantly, research using the Australian Childhood Cancer Registry data is of benefit to clinicians, pediatric cancer patients and their families.