Australian Childhood Cancer Registry

Cancer is the number one cause of disease-related death in children 1-14 years of age in Australia. Cancer Council Queensland is working every day to improve outcomes for children with cancer.

The Australian Childhood Cancer Registry (ACCR) is one of only a few national registries of childhood cancer in the world and the only Australian population-based registry specifically for childhood cancer. Information is collected with the support and assistance of all State and Territory Cancer Registries and all treating paediatric oncology hospitals throughout Australia. Funded and managed by CCQ, and with appropriate ethical and legislative approvals, the Registry records clinical and treatment information on each of the 750 to 800 children a year diagnosed with cancer in Australia.

The ACCR is therefore a rich source of information on childhood cancer, containing a complete register of more than 20,000 cases of childhood cancer diagnosed in Australia since 1983.

Impact of ACCR research

Collection of a population-based, nationally consistent childhood cancer clinical data set is essential for national reporting, international benchmarking and clinical epidemiologic research. The ACCR provides current, accurate and accessible information about incidence, mortality and survival – information that is vital for addressing the future needs of children with cancer.

Most importantly, research produced by the ACCR is of benefit to clinicians, paediatric cancer patients and their families.

Childhood cancer statistics

Our continued investment into childhood cancer research plays a significant role in saving lives and beating childhood cancer. A range of information on childhood cancer incidence, survival and mortality has been produced using data collected by the Australian Childhood Cancer Registry and is freely available to anyone with an interest or involvement in childhood cancers at the following links.

Childhood cancer staging for population registries

The collection of internationally consistent information on childhood cancer stage by population-based cancer registries is essential for epidemiologic analysis, international benchmarking and meaningful comparisons of childhood cancer incidence and outcomes.  The Australian Childhood Cancer Registry has had a leading role in the development and testing of rules for the collection of childhood cancer stage by cancer registries.  We provide here a manual containing detailed descriptions of the staging systems recommended in the Guidelines to assist population cancer registries to collect internationally consistent and comparable information on childhood cancer stage at diagnosis using available medical records.

This work was supported through a national initiative by Cancer Australia as part of an approach to improving national cancer data on stage, treatment and recurrence.