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At a glance
While survival rates for childhood cancer are high, many survivors face long-term health challenges, including physical, mental, and social issues. This research uses data from the Australian Childhood Cancer Registry to better understand the long-term impacts on survivors and compare their outcomes to siblings and other Australians. The findings will help develop better care and support to improve the lives of those affected.
Your donation funds groundbreaking cancer research for Queenslanders.
The incidence of cancer among children rare but increasing over time. More than 20,000 Australians are alive today who were diagnosed with a cancer as a child. While improving survival rates is the good news, the not so good news is the potential impact that treatment for childhood cancer may have on longer term health, including into adulthood. International research shows that up to 80% of childhood cancer survivors experience late effects including physical, psychological and social problems. It is also estimated that one-third of childhood cancer survivors experience severe or life-threatening complications within 25 years of their initial cancer diagnosis. There is a clear need for Australian studies to quantify the healthcare use and long-term health outcomes, or late effects, among childhood cancer survivors.
This is a data-linkage project that makes use of the unique data from the Australian Childhood Cancer Registry, alongside data from other population-based databases such as the Medicare Benefits Schedule, Hospital admissions, and mental health, fertility, education datasets. The linked data allow for comprehensive assessment of the late effects and the subsequent impact of these late effects on Australians diagnosed with cancer while children. This project represents a collaboration with University of Sydney and University of Queensland, made possible by Cancer Council Queensland’s support of the registry and additional funding and expertise from Cancer Australia, the Medical Research Future Fund, the Population Health Research Network, Australian Institute of Health and Welfare, and Data Linkage Units around the country.
The results of this study will provide critical evidence to inform the future development of interventions to reduce the impact of late effects of receiving treatment for a childhood cancer, including what constitutes appropriate follow up care to help prevent and manage future health risks.
Professor Peter Baade is an experienced biostatistician with over two decades of experience working at Cancer Council Queensland, where he leads a research program dedicated to understanding patterns in cancer outcomes across diverse populations in Australia and beyond.
View research profile
Professor Natalie Bradford has a clinical background as a children’s cancer and palliative care nurse spanning over 20 years.
