Australian Childhood Cancer Registry

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At a glance

The Australian Childhood Cancer Registry, managed by Cancer Council Queensland, collects detailed data on every child diagnosed with cancer nationwide. This vital resource supports research, tracks survival rates, and helps improve care for children and families affected by cancer.

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What do we know and what do we still need to learn?

Childhood cancer is rare, making up only about 1% of all cancers. Each year in Australia, around 900 children aged 0-14 years are diagnosed with cancer. While that number is relatively small, it’s gradually increasing over time and we don’t know why. The good news is that survival rates have improved significantly. Thanks to advances in treatment, more children are surviving cancer than ever before. However, cancer is still the leading cause of disease related death in children and young people.

What is the study?

The Australian Childhood Cancer Registry is one of only a few national registries of childhood cancer in the world and the only Australian population-based registry specifically for childhood cancer. It has data on every child diagnosed with cancer between the ages of 0-14 years in Australia dating back to 1983 with over 26,500 individual people represented. Information is collected with the support and assistance of all State and Territory Cancer Registries and all hospitals that treat childhood cancer throughout Australia. Funded and managed by Cancer Council Queensland, and with appropriate ethical and legislative approvals, the Registry records clinical and treatment information on every child diagnosed with cancer each year in Australia.

Consistent information is collected about staging and other prognostic indicators allowing us to benchmark and make international comparisons. The registry also collects information about treatment, relapses and second cancers making it one of the most comprehensive registries in the world. Data collection and analyses will continue with the goal of increasing the understanding of how cancer impacts Australian children. The Australian Childhood Cancer Statistics Online provides recent incidence, survival and mortality data by sex and age group for the most common cancers among children in Australia.

Why is this project important?

Collection of a population-based, nationally consistent childhood cancer clinical dataset is essential for national reporting, international benchmarking and clinical epidemiologic research. The Australian Childhood Cancer Registry provides current, accurate and accessible information about incidence, mortality and survival – information that is vital for addressing the future needs of children with cancer.

We know survivors of childhood cancer are at high risk of adverse long-term health conditions, known as late-effects, due to their cancer and its treatment. These include second cancers and a range of serious, chronic health conditions that carry significant morbidity and mortality. International research tells us 80% of childhood survivors are likely to be diagnosed with a serious chronic health condition by the time they reach age 40.

Survivors of childhood cancer in the registry are now aged in their 50’s; this provides unique opportunities for population-based research to better understand what happens to people diagnosed with cancer as a child over time.

Dive into the data

Explore the Australian Childhood Cancer Statistics online tool.

Meet the researchers

Professor Peter Baade
PhD (Epidemiology), Master of Medical Science, Bachelor of Applied Science (Statistics, Honours)Research Lead, Cancer Epidemiology

Professor Peter Baade is an experienced biostatistician with over two decades of experience working at Cancer Council Queensland, where he leads a research program dedicated to understanding patterns in cancer outcomes across diverse populations in Australia and beyond.

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Natalie Bradford
Professor Natalie Bradford
PhD (Health Services Research), Master of Public Health (Epidemiology), Bachelor of NursingGroup Lead, Childhood Cancer

Professor Natalie Bradford has a clinical background as a children’s cancer and palliative care nurse spanning over 20 years.

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