Life after cancer treatment

This page covers

When treatment finishes

Finishing cancer treatment is an important milestone. Families may feel relief, happiness and excitement.

You may also feel worried, uncertain or less secure without regular contact with the hospital. These feelings are common.

Many parents worry about the cancer returning. Children and young people may also feel nervous about going back to school, seeing friends or returning to everyday life.

There is no right way to feel when treatment finishes.

Follow-up care

Your child will continue to have appointments after treatment. Appointments will be more frequent soon after treatment is completed and reduce in frequency over time. These visits help the healthcare team:

  • Check your child’s recovery.
  • Look for signs that the cancer may have returned.
  • Manage ongoing side effects.
  • Support healthy growth, development and wellbeing.
  • Monitor for health problems that could develop later.
  • Answer questions as your child gets older.

Before leaving treatment, ask for a clear follow-up plan.

The plan should explain:

  • When appointments will happen
  • Which doctors your child will see
  • What tests may be needed
  • Who to contact between appointments
  • Which symptoms should be reported
  • When vaccinations can restart
  • When your child can return to school, sport and other activities.

Adjusting to everyday life

Returning to everyday life can take time. Your child may still experience tiredness, changes in appearance, difficulty concentrating or strong emotions.

Start gradually and follow the advice of your child’s healthcare team. Schools may be able to offer temporary adjustments, such as shorter days, rest breaks or extra learning support.

Recovery is not always a straight line. Some days will feel easier than others. Support remains available after treatment has ended. Organisations and support services include:

When treatment doesn’t go to plan

Understanding palliative care

Sometimes cancer does not respond to treatment as hoped, comes back or cannot be cured.

During this time, the healthcare team may talk with you about palliative care.

Hearing the words palliative care can be frightening. It does not mean that the healthcare team is giving up on treating your child.

Palliative care focuses on helping your child feel as comfortable and well as possible. It can be provided alongside cancer treatment and may begin at any stage of an illness.

How palliative care can help

The palliative care team may help manage:

  • Pain
  • Nausea
  • Breathing problems
  • Tiredness
  • Sleep difficulties
  • Anxiety or distress
  • Other symptoms caused by the cancer or treatment.

The team also supports your child’s emotional, social, cultural and spiritual needs.

Support is available for parents, siblings and other people close to your child. Speak to your child’s healthcare team if you would like a referral to palliative care.

When cancer comes back

Sometimes cancer returns after treatment. This is called a relapse or recurrence.

Hearing this news can be very difficult.

Many parents describe feeling as though they are back at the beginning again.

What happens next?

If the cancer returns, your child’s healthcare team will explain:

  • Where the cancer has returned
  • Whether more tests are needed
  • What treatment options are available
  • What the treatment goals are.

These options may include:

  • Chemotherapy
  • Surgery
  • Radiation therapy
  • Stem cell transplant
  • Immunotherapy
  • Targeted therapy
  • Clinical trials.

Every child’s situation is different.