Working while caring

Many cancer carers juggle the responsibilities of work alongside their caregiving roles. Your job and your role as a carer may be both important and necessary parts of your life. We’re here to provide you with practical tips to help balance the demands of caregiving, work, and family, as well as where to find support.

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Understanding your role as a cancer caregiver

Cancer carers are any people who balance paid employment with providing unpaid personal care, assistance and support to someone going through cancer. There are many different situations that qualify as providing care:

  • You may be a partner, relative, friend or neighbour
  • The person you are providing care for may or may not be in the workforce themselves
  • Care can be part-time or full-time, for a short time or long term
  • The support can be practical (like helping with meals, personal care, 
travel to doctors), emotional (talking and listening) or spiritual (like praying)

Your paid carer’s leave entitlements

Understanding your paid carer’s leave entitlements is crucial for cancer carers because it allows you to make informed choices about the care you can provide. Paid carer’s leave is available to cancer caregivers when looking after certain members of your family or people you live with, including:

  • Immediate family members – a spouse, de facto partner, partner, 
child, parent, grandparent, grandchild or sibling (brother or sister)
  • Your partner’s immediate family members – a child, parent, sibling, 
grandparent or grandchild of your spouse, partner or de facto partner
  • Household members – any person who lives with you
  • Former partners – a former or ex-spouse, partner or de facto partner

Balancing work and being a cancer caregiver

When considering becoming a cancer carer you will need to weigh up your ability to handle both your care commitments and your responsibilities at work. Caring can affect your work in various ways, including your hours, productivity, the time you may need to take off, and your ability to focus.

It can also take a toll on your emotional and physical wellbeing. When making decisions, consider factors like:

  • What treatment the person you are caring for is having
  • How unwell the person with cancer is
  • Whether travel time (regional to city) is a factor
  • What your caring and work duties involve
  • The amount of additional help or respite care available
  • How supportive your employer is
  • Your finances and whether you need to earn an income
  • Your leave entitlements
  • The personal satisfaction you get from working
  • Whether a break will have a large impact on your career progression 
or future employability
  • Whether the caring arrangement is most likely to be temporary or 
long term
  • What will give you peace of mind

Managing your workplace

You aren’t required to tell your employer that you are a carer, but opening a conversation with your employer about your role as a cancer carer may help them to understand and accommodate your needs. It may also help you access carer’s leave and flexible working arrangements.

You may wish to discuss:

  • Ways your employer offers support for carers of cancer patients
  • The impact that your caring role is likely to have on your work commitments and career goals
  • Taking time off or setting up flexible working arrangements
  • Infection risk if the person you care for is immunocompromised
  • Whether the caring role is likely to be short term or long term
  • The benefits for your employer if you stay in your position
  • Who else at work should know about your situation

Your rights at work

Get to know the policies your workplace has for employees with caring responsibilities and what your employment contract, award or enterprise agreement says before you speak with your employer. The Disability Discrimination Act 1992 protects carers of people with cancer from workplace discrimination. This means that you can’t usually be dismissed for taking the caring leave you are entitled to.

Privacy

Discussing your role as a cancer caregiver with your co-workers is an entirely personal decision. If you prefer to keep your caring role confidential, your employer needs to respect your wishes. If you tell your co-workers about your caring role, they may be a source of support or provide some ideas for how the team can adapt to your changed needs. Some of your fellow employees may also be working carers.

Resigning

You should also talk to your employer if you are thinking about resigning. They may not want to lose you and may suggest some options to help you remain at work that you hadn’t thought about.

Taking leave as a cancer caregiver

It may be necessary to take time off work or to stop working for a while to look after the person with cancer. Your employer can ask for basic facts about why you need time off, however an employer cannot take action against you for taking your leave. Leave you may be entitled to includes:

  • Personal leave
  • Annual leave or long service leave
  • Unpaid leave
  • Leave without pay

Financial help for cancer caregivers

Working carers often depend on their income to support their family and the person who is unwell. If your income drops because you need to take time off work, there are some financial help for cancer caregivers options available:

  • Call Cancer Council Queensland on 13 11 20 to see what support may be available. We may be able to refer you to a financial adviser or financial counsellor, depending on your location.
  • Centrelink supports carers with a range of payments, including the Carer Payment and Carer Allowance. To check if you are eligible, call 132 717 or visit the Services Australia website.
  • Call the National Debt Helpline on 1800 007 007 or visit the National Debt Helpline website, or call the Rural Financial Counselling Service on 1800 686 175 for free, confidential financial counselling.
  • Speak to a social worker to see what counselling for cancer carers assistance is available.
  • You may be able to get early access to your superannuation if you are caring for a dependent, such as a child. Talk to your superannuation provider to find out if you’re eligible.

Other support options

There is a wide range of cancer carers support available to help you with both the practical and emotional aspects of your caring role. The availability of services may vary depending on where you live. Some services are free, but others may have a cost. Cancer carers support services include:

  • Carer Gateway works with the Carers Associations in each state and territory to provide services to carers. These include short-term counselling and information on respite and other services. Call 1800 422 737 or visit the Carer Gateway website
  • Respite services are available to give you a break. It can be for a couple of hours, overnight or several days. You can use respite care for any reason, such as looking after your own health, visiting friends or going to appointments. Carer Gateway provides information about respite and other support services. Call 1800 422 737 or visit the Carer Gateway website. Oncology social workers can also offer support and refer you to appropriate services.

Questions you may have…

Can you claim cancer carer allowance for someone with cancer?

A carer provides unpaid personal care, assistance and support to someone with an illness or disability, including cancer. Centrelink supports carers with a range of payments, including the Carer Payment and Carer Allowance. To check if you are eligible, call 132 717 or visit the Services Australia website.

Can you get carers payment for a child with cancer?

You may be entitled to financial support when providing care for a child who is an immediate family member (child, grandchild or sibling), an immediate family member of your partner (a child, sibling, or grandchild of your spouse, partner or de facto partner) or a household member (any person who lives with you). Centrelink supports carers with a range of payments, including

the Carer Payment and Carer Allowance. To check if you are eligible, call 132 717 or visit the Services Australia website.

Does a cancer carer need to be a family member?

No. A carer provides unpaid personal care, assistance and support to someone with an illness or disability, including cancer. That person may be a partner, relative, friend or neighbour.

Is carer’s leave paid?

Personal leave (which includes sick leave and carer’s leave) is paid leave. The National Employment Standards outline the rules for personal leave which include 10 days of paid personal leave each year for full-time employees. Part-time employees receive this entitlement on a pro rata (proportional) basis, based on the number of hours they work.

Have other questions? Talk to us.

Our team is here to listen and support you.