Teleheath Making Sense of Brain Tumour Project

Project:  Evaluation of a telehealth intervention for delivering psychosocial support to people with brain tumour and their families

HREC Reference number: HREC/2018/QMS/43843

Study summary

This collaborative project between Cancer Council Queensland, Griffith University and the Princess Alexandra Hospital aims to find out whether a telehealth psychological support program can improve the mood and quality of life of adults with a brain tumour and their family. Participants will be randomly allocated to receive the telehealth program or standard psychological support from Cancer Council Queensland.

The telehealth program is based on the Making Sense of Brain Tumour program which has been found to be effective for improving people’s emotional well-being and quality of life when delivered in person or face-to-face. This program has been adapted for delivery via Zoom video conferencing platform. A psychologist will use a private room with video conferencing facilities to deliver 10 x 1 hour sessions of psychological support to the person with a brain tumour and family member/s in their home via a home PC, laptop or tablet.

Ethical clearance

All research in Australia involving humans is reviewed by an independent group of people called a Human Research Ethics Committee (HREC). The ethical aspects of this research project have been approved by the HREC of Metro South Hospital and Health Service (which governs Princess Alexandra Hospital) and Griffith University. This project will be carried out according to the National Statement on Ethical Conduct in Human Research (2007). This statement has been developed to protect the interests of people who agree to participate in human research studies.

Who is eligible to take part?

People will be eligible if they meet the following criteria:

  • Diagnosed with a benign or malignant primary brain tumour at any stage of disease or time post-onset
  • Adequate cognitive capacity and receptive and expressive English language skills to provide informed consent and participate in therapy
  • Reliable access to the internet and a computer, which individuals can operate independently or with a family member’s support
  • Aged 18 years or older.

The researchers will conduct a screening assessment for psychological distress.

For staff at the Princess Alexandra Hospital (Brisbane) only, please complete the Online Referral Form.

For all other health professionals, please email the project coordinator: stephaniejones@cancerqld.org.au

For people with a brain tumour interested in the project, please call Cancer Council Queensland on 13 11 20 between the hours of 9am to 5pm, Monday to Friday (excluding public holidays).