Brain Tumour Support and Information

If you or someone close to you has been diagnosed with a benign or malignant brain tumour, coping with changes to your life can be stressful and challenging. Our Brain Tumour Support Service provides resources, information sessions with health professionals, and opportunities to meet others dealing with a brain tumour. We can also assist with referrals to Cancer Council Queensland support programs and other community services.

To access this service or sign up to the e-newsletter phone 13 11 20 or email btss@cancerqld.org.au.


Support for patients and carers

Cancer Council Queensland offers a range of services and support programs that are here to help you.

Find out more about:

We can also refer you to brain tumour support groups which operate across Queensland including Brisbane and the Sunshine Coast. For more information phone Cancer Council on 13 11 20.

Cancer Council NSW Brain Tumour Telephone Support Group provides the opportunity for you to talk with other people living with a brain tumour. Group members range from those who are newly diagnosed, to those who have been living with a brain tumour for some time. You can join the group from anywhere in Australia. All you need is an hour, a telephone and a quiet, private space. Participation is free and confidential. Email tsg@nswcc.org.au to find out more.


Information sessions

Brain Tumour Support Services offers free information sessions for people living with benign or malignant brain tumours, their families and friends. Sessions are run through the year in Brisbane and are run by health professions.

These sessions cover a variety of topics and assist people to adjust to the diagnosis and treatment of cancer by providing:

  • Support – providing the opportunity to share experiences with others going through a similar experience
  • Information – about cancer and treatments to help people prepare for treatment and to participate better in treatment decisions
  • Skills training – relaxation techniques and helpful ways to managing thinking.

View all upcoming information sessions and register online.


E-newsletter

The Brain Tumour Support Service publishes an e-newsletter for patients, families, carers and health professions. Each edition covers a variety of topics including research, treatment, upcoming events and support services.

To sign up or find out more, phone Cancer Council Queensland on 13 11 20 or by emailing btss@cancerqld.org.au.

Current Edition

Previous Editions

2016

2015

2014

2013


Making connections

Talking to others who have been affected by the diagnosis of a brain tumor can sometimes help. Connect with people over the telephone, online or face-to-face through a brain tumour support group.

Download the PDF


Support services for people affected by brain tumours

ABIOS, Beyond Blue, Carers Queensland, CanTeen Counselling Service are just a few of the additional support services available to people suffering from brain tumours.

Download the PDF


Brain tumour awareness

A number of organisations and not-for-profit groups are actively working to raise awareness of brain tumours and brain cancer.

Download the PDF


Share your cancer story

Diagnosis and treatment is a difficult experience – but hearing how others have coped can provide support and inspiration.

Patients and families regularly share their experiences of brain tumours in our newsletter. If you have a personal experience of brain tumours that you would like to share, we would love to hear from you.

Read about the cancer stories of others, or share your own story with us via email or online.


Resources

Brain tumour specific resources are available through the Cancer Council Queensland on 13 11 20 or by emailing btss@cancerqld.org.au.

The following print materials may be of assistance:


Podcasts

BTAA Patient Advocate Network Summit Consumer Forum – Q&A Panel

This session is from the 3rd National Brain Tumour Alliance Australia (BTAA) Patient Advocate Network Summit Consumer Forum 2015. The session addresses some of the practical aspects of living with a brain tumour, including psychological support strategies, managing day to day with everyday tasks, tips on communicating more effectively with treating teams and coping when a child has a brain tumour.

 

BTAA (Brain Tumour Alliance Australia) Patient Advocate Network Summit Consumer Forum

Michelle Stewart, Head of Research Strategy, Cure Brain Cancer Foundation, provides an insight on the importance of clinical trials in the Australian context and the work Cure Brain Cancer Foundation undertakes.

 

Professor Martin van der Bent

Neuro-oncologist Professor Martin van der Bent from the Brain Tumour Center at Erasmus MC Cancer Center presents on the topic of “What is new in the treatment of primary brain tumours?”