Working Together – July 2016

The year seems to be flying by so quickly for us here at CCQ and no doubt it’s the same at your workplace too. Thanks in advance for taking the time to read our latest edition of Working Together, where we aim to share with you some of the ways your support is making a difference.

Most of us know someone affected by cancer. Every year, over 26,000 Queenslanders are diagnosed with cancer. But every day there is more reason for hope than ever before. Cancer research is discovering new and better treatments, cancer prevention campaigns are working, and support for those affected by cancer is improving all the time. This August, we celebrate 30 years of Daffodil Day and aim to raise $1.5 million in Queensland – your support can help take us one step closer to beating cancer.

National Fire Industry Association continues to support CCQ

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Cancer Council Queensland is an independent, community-based charity, and our achievements are only made possible by the generosity of Queenslanders. This is why partnerships with organisations such as the National Fire Industry Association – Queensland are so important, to ensure we can continue our work toward a cancer free future, giving all Queenslanders the best possible chance of preventing, detecting, effectively treating and surviving a cancer diagnosis.

The National Fire Industry Association represents the interests of Australia’s fire protection industry, and the Queensland chapter has supported Cancer Council Queensland for over 15 years now, raising over $190,000 over the past 16 years through their annual fundraising event.

This year, they held a Race Day at Doomben Race Course on Saturday, 30 April with we 150 guests. NFIA-Q hired the East Terrace Restaurant, a 3 tier facility with plate glass windows facing the track, so every table had an uninterrupted view of the track.

The day was sponsored by Windsor Management Insurance Brokers, The BERT Fund, CIPQ, Pertronics, ARA Fire, Service Trades College. Part of the sponsor’s package was that 4 guests had the opportunity to go to either the starting gate or up into the Race Caller’s box. They also had Fashions in the Room, which were judged by CCQ guests attending on the day, as well a couple of raffles. The event raised $10,000 for Cancer Council Queensland, which is a fantastic result.

CCQ & NFIAQ Cup presentation

Professor Joanne Aitken, Head of Research and Director of Registries, CCQ, presenting the “CCQ and NFIAQ Cup” in the Winners Circle following the Victory Stakes race, the main race of the day.

We are incredibly grateful for the continued support of NFIA-Q, and the generosity of their member companies and sponsors who enable such fantastic fundraising results each year.

If you have an idea for a fundraising event through your company and would like to nominate CCQ as the beneficiary, we’d love to hear from you! Email us at workingtogether@cancerqld.org.au or call (07) 3634 5193.

 

CCQ’s Brain Tumour Support Group

Every year in Australia around 1700 people are diagnosed with a malignant brain tumour, with approximately 130 of those people being aged under 15 years. Approximately 80 people are diagnosed with malignant spinal cord or central nervous system tumours each year. In Queensland in 2012, 308 people were diagnosed with malignant brain tumours and 250 people died. Unfortunately data about benign brain and spinal cord tumours is not collected but we do know that benign tumours are more common than malignant tumours. In addition to those diagnosed with malignant brain tumours it is estimated that 2350 people including children are diagnosed with a benign tumour each year. In 2014, 1,366 deaths were due to primary brain cancer with brain cancer being the leading cause of disease-related death amongst children aged one to 14 years and the second leading cause of cancer death among young people aged 15 to 24 years. In adults aged 25 to 44 years, brain cancer was the third leading cause of cancer death after breast and colorectal cancer. Each year 1,200 people in Australia die of brain cancer and on average, there’s a loss of 12 years of potential life; the highest average loss of life from any type of cancer. Only 25 per cent of people diagnosed with a brain tumour survive for at least five years.

There are more than 100 types of brain and spinal cord tumours. Benign tumours usually have slow-growing cells and rarely spread though they may press on the brain, spinal cord or cranial nerves and can cause symptoms. As they can be found in areas of the brain that control vital life functions, benign tumours can be life-threatening or cause long-term cognitive or behavioural effects, and may require urgent treatments. Pituitary tumours, meningiomas, neuromas and pilocytic astrocytomas are the most common types of benign tumours. Malignant tumours are cancerous and these life-threatening tumours often grow rapidly and may spread within the brain and spinal cord, or reoccur even after treatment. Just over 40% of all brain and spinal cord tumours are malignant. The most common type of malignant brain tumours in adults and children are called gliomas of which there are three types; astrocytomas, oligodendrogliomas and ependymons. Primary cancers, including melanoma, bowel, breast, kidney and lung cancer can spread to the brain, resulting in secondary brain tumours called metastatic brain tumours.

Although primary brain tumours account for less than 3% of all cancers, they represent significant burden for patients and their families or carers.
As the brain plays a unique role in the body’s essential functions, the impact the tumour has on a person is dependent on the type, size and location of tumour. General symptoms may include headaches, seizures, changes in personality and balance, nausea and confusion. Tumours may also cause weakness or paralysis in parts of the body. Other symptoms might include memory or vision loss, behaviour change, changes in appearance and mood, loss of bodily, mental and cognitive functions, hearing difficulties, speech changes, fatigue and depression. People also need to cope with uncertainty with a poor prognosis, fear of recurrence, the inability to drive or work, and changes to roles and relationships.

At Cancer Council Queensland we have recognised the high level of need for support and information for people living with a brain tumour experience. Our Brain Tumour Support Service provides free information, support and referral for people diagnosed with a benign or malignant brain tumour, their family and friends. We provide information on brain tumours and treatment, offer practical support and can link people to support services available. We hold regular information sessions in the Brisbane office, providing opportunities to meet with other people who have been impacted by a brain tumour, and hear guest speakers including professionals discussing topics of interest. Recordings of sessions are available online through our website and youtube channel. Our Brain Tumour Support Service newsletters are distributed to over 300 people three times each year and we hold an annual an annual brain tumour forum for health professionals.

For more information about this service, visit our website /get-support/cancer-emotional-support/brain-tumour-support/. To access the service or to sign-up to the e-newsletter, phone 13 11 20 or email btss@cancerqld.org.au.

 

Daffodil  Day celebrates 30 years in 2016

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The Daffodil is the international symbol of hope, and is central to Cancer Council’s brand.

Daffodil Day is the largest merchandise based fundraising event in the southern hemisphere, raising millions of dollars each year make a difference for cancer patients and their families all over Australia.

Friday, 26th August 2016 marks the 30th year of Daffodil Day in Australia.

To raise funds, merchandise and fresh daffodils are sold through public ‘blitz sites’ and through partner organisations with a wide retail footprint. We invite you to join us this Daffodil Day to make 2016 not only the 30th year of Daffodil Day, but the most successful Daffodil Day in history!

In addition to the National Partners Coles Express, Gordon and Gotch and Startrack, we are incredibly grateful to have the support of the following companies in Queensland this year;

How can you help?

  • Sell merchandise through your workplace during the month of August
  • Display posters in your office/store/workshop to promote Daffodil Day to your customers
  • Volunteer to help sell merchandise at public blitz sites on Daffodil Day, Friday 26th August
  • Adopt a Daffodil Day site – your company or office building can own your own Daffodil Day
Daffodil Day volunteers

For more information about any of the above opportunities, email workingtogether@cancerqld.org.au. To find out more about volunteering for Daffodil Day, visit the Daffodil Day website.

Charles Wanstall Apex Lodge receives an upgrade

Charles Wanstall Apex Lodge opening

In 2016, CCQ embarked on a major upgrade of our Herston accommodation facility, Charles Wanstall Apex Lodge (CWAL), one of CCQ’s Brisbane accommodation lodges offering a home away from home for regional cancer patients and their care givers, who need to travel to Brisbane for life saving cancer treatment.

CWAL first opened its doors in 1983 and has 35 self-contained units ranging from studio apartments to three bedroom family units, accommodating an average of 70 patients and carers per night, with occupancy rates at around 95% each year.

The rooms at CWAL are now over 30 years old and in much need of an upgrade. Some patients’ cancer treatment can last for up to 6-8 weeks, which is a very long time to be away from family and friends, particularly for those having to travel a long distance. We aim to make their stay as comfortable as possible and this upgrade will ensure that the facilities are of the highest standard for years to come.

We are proud to be partnering with yourtown (Formerly BoysTown) on Stage One of this project. yourtown are providing the labour and project management component of the refurbishment, through their traineeship program.

yourtown workers CWAL work begins

The following companies are also generously supporting us through Stage One:

Blue Dog Training cheque presentation

Blue Dog Training CEO Christine Skippington presents a cheque to CCQ’s Executive Manager, Business Services, Wendy Healy

Earlier this month, we received a $785,000 Federal Government grant which will cover 50% of the cost of complete upgrades to the rest of the Lodge over the coming years. The project will include modernisation of 29 rooms, office and communal spaces, and wi-fi systems, creating nearly 60 jobs during and after construction and generating a direct economic benefit of over $1.5M for the local economy.

CCQ's CEO Professor Jeff Dunn AO joined Federal Minister Peter Dutton and Trevor Evans LNP for the funding grant announcement at CWAL

CCQ’s CEO Professor Jeff Dunn AO joined Federal Minister Peter Dutton and Trevor Evans LNP for the funding grant announcement at CWAL

Cancer Council Queensland CEO Professor Jeff Dunn AO welcomed the lifesaving commitment. “This funding will provide a vital lifeline for regional Queenslanders travelling to Brisbane for cancer treatment,” Prof Dunn said. “It will help improve access to world-leading clinical and supportive care services, helping to prevent the estimated 350 regional cancer deaths each year due to the city-country divide. It has long been established in evidence that cancer patients living in outer regional areas are more likely to die within five years of a diagnosis than those living in cities. Our research estimates 13 per cent of all regional cancer deaths are preventable, with about 350 deaths avoidable each year if survival rates in the bush were equal to those in the city.”

In order to complete the remaining project, we will be seeking support from our generous community to assist with the remainder of this project. In addition to donations, we specifically require assistance for the following building materials;

  • Gyprock
  • Carpet
  • Curtains/blinds
  • Kitchen equipment
  • Electrical and plumbing expertise.

If you would like to help, please contact us at workingtogether@cancerqld.org.au or phone (07) 3634 5193.